Another rheumatologist who I saw on Monday, (who is also a specialist in fibromyalgia), confirmed several diagnoses. There is nothing more that can currently be done to help me, that I haven't already tried. He explained that fibro is a collection of symptoms, the best approach being to manage the symptoms as much as possible. They don't know what the causes are, or how to treat them. All patients are different... etc. I've heard all of it before, but this time it was from a specialist in the actual disease. He was convinced, however, that the costochondritis symptoms, Reynauds symptoms, nerve pain and numbness, neuromas, sciatica, sinusitis and migraines are all symptoms of fibro. This makes sense because none of them have responded to 'normal' treatments, and are not showing up in the tests that normally indicate these problems.
Soo... I will continue to manage the symptoms without being able to turn to the medications normally used for those problems. He was happy that I've settled on the simplest combination of medication, at a dosage that seems optimal for me. As I am already using most/all of the complementary techniques, there is nothing else he could think of that would help me. Because I have less-than-optimal kidneys, I can't use the other medication avenue that would likely help (anti-inflammatories). All the tests, including xrays, bone scan and MRIs showed nothing abnormal, which made the rheumatologist very pleased. It shows that I'm not developing arthritis, or that I have any other underlying problems. Just fibromyalgia (and adenomyosis/endometriosis). I wish for a magic pill to make it all better!