Monday, June 25, 2007

Chronic pain

I've come across this list on several support groups, and have no idea who the original author is. But.... it's resonating. Especially today. People at my workplace could do with reading this.

Tips For Dealing With People In Pain

  1. People with chronic pain seem unreliable (we can’t count on ourselves). When feeling better we promise things (and mean it) when in serious pain; we may not even show up.
  2. An action or situation may result in pain several hours later, or even the next day. Delayed pain is confusing to people who have never experienced it.
  3. Pain can inhibit listening and other communication skills. It’s like having someone shouting at you, or trying to talk with a fire alarm going off in the room. The effect of pain on the mind can seem like attention deficit disorder. So you may have to repeat a request, or write things down for a person with chronic pain. Don’t take it personally, or think that they are stupid.
  4. The senses can overload while in pain. For example, noises that wouldn’t normally bother you, seem to much.
  5. Patience may seem short. We can’t wait in a long line; can’t wait for a long drawn out conversation.
  6. Don’t always ask, "How are you" unless you are genuinely prepared to listen it just points attention inward.
  7. Pain can sometimes trigger psychological disabilities (usually very temporary). When in pain, a small task, like hanging out the laundry, can seem like a huge wall, to high to climb over. An hour later the same job may be quite OK. It is sane to depressed occasionally when you hurt.
  8. Pain can come on very quickly and unexpectedly. Chronic pain people appear to arrive and fade unpredictably to others.
  9. Knowing where a refuge is, such as a couch, a bed, or comfortable chair, is as important as knowing where a bathroom is. A visit is much more enjoyable if the chronic pain person knows there is a refuge if needed. A chronic pain person may not want to go anywhere that has no refuge (e.g. no place to sit or to lie down).
  10. Small acts of kindness can seem like huge acts of mercy to a person in pain. Your offer a pillow or a cup of tea can be a really big thing to a person who is feeling temporarily helpless in the face of encroaching pain.
  11. Not all pain is to locate or describe. Sometimes there is a body wide feeling of discomfort, with hard to describe pains in the entire back, or in both legs, but not in one particular spot you can point to. Our vocabulary for pain is very limited, compared to the body's ability to feel varieties of discomfort.
  12. We may not have a good "reason" for the pain. Medical science is still limited in its understanding of pain. Many people have pain that is not yet classified by doctors as an officially recognized "disease". That does not reduce the pain, - it only reduces the ability to give it a label, and have you believe us.
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